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This organization is a 501(c)3 tax-exempt organization, and your donation is tax deductible within the guidelines of U.S. law. Please keep your receipt as your official record. We'll email it to you upon successful completion of your donation.

Walk Through the Storm with Us

Walk with us to reshape the endometriosis story. Your gift empowers education for families and professionals, driving equity and recognition across all genders and body systems—not just reproductive.

About Walk Through the Storm with Us

Endometriosis affects nearly 200M people worldwide. Many suffer 7–10 years and see 5–7 providers before diagnosis. It’s not just reproductive—it can damage kidneys, lungs, bowels, nerves, and more. Extrapelvic Not Rare, 100% volunteer-operated by people living with extrapelvic endometriosis, leads the fight with evidence-based education and advocacy to expand recognition of disease beyond female reproductive organs, improve care, and save lives. Walk with us to reshape the story.

5 people,their backs to us, wearing different color rainjackets with yellow umbrellas are walking by a sign that says 'Help us build The Endometriosis Edu-Walk'

Endometriosis Edu-Walk

Full funding for (1) EPNR Endometriosis Edu-Walk is $2,500. Full funding will cover materials, production of finished products in english and spanish. A virtual version will be offered at each event for attendees who are unable to participate in the live course. Content and length is adjustable for participate age, background and setting. This program is ideal for use on academic campuses and community parks. We aim to make this program available to high school students for Senior Projects.
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A stack of 'The ABCs of Extrapelvic Endometriosis' hardback books displayed with a 3-D model of the human body.

Fund a copy of 'The ABCs of Extrapelvic Not Rare' for a public library.

Your donation provides hardback copies of this visually rich book to libraries, giving adolescents and adults access to accurate information about a common yet overlooked disease. It includes myth-busting content and an A–Z pictorial guide of affected body areas. Placing books in libraries raises awareness and empowers earlier recognition of symptoms.
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Support Education and Hidden Needs of Menstruators with Financial Hardship

Supporting the Hidden Needs of Menstruators serves low-income, immigrant, and refugee populations at designated Resource Fair - literature about endometriosis and menstrual supplies are distributed. A separate program for tweens provides introductory literature, 'What is a Period?' that includes what's not normal. Tweens also receive a “Just in Case” sealed kit by Red Drop, Inc.—periods arrive whether or not prepared. Irregular cycles limited household support can make these kits essential.
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EXTRAPELVIC NOT RARE
, 98686-2264 US
Donor Support
wendybinghamdpt@extrapelvicnotrare.org+1 8015609625
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