Mother’s Fight for Miracles:
From 1 Child’s Hope to 10 More

A Mother’s Fight for Miracles:
From 1 Child’s Hope to 10 More

After two long years of IVF, Maxwell and Riley Freed, were born on March 27, 2017. In that moment, my world was filled with more joy, love, and purpose than I ever imagined. I counted twenty tiny fingers, twenty tiny toes — and life was perfect. 

But at four months old, I sensed something wasn’t right. While Riley reached milestones effortlessly, Maxwell struggled. He wanted to move, play, and grasp — yet his tiny body wouldn’t cooperate. Family and friends reassured me, but mother’s intuition sounded louder than a freight train. Maxwell was slipping through his mother's arms, and I was helpless. 💔💔💔

Two months later I sat in a cold, sterile hospital room filled with sad doctors and heard every parent's nightmare:

“Your son has a rare genetic disorder called SLC6A1.  Nothing can be done.  Go home and give him the best life possible.”

Maxwell’s life was over before it began. His rare condition resembled Parkinson’s, Alzheimer’s, and epilepsy — but in a child. I would have done anything to take his place.

My world shattered. But mother's determination set in:

I would fight.
Fight for Maxwell’s future.
Fight for every child like him.
Fight like a Mother.

I left my career and began contacting scientists across the world— and I found hope. Maxwell’s condition could be treated via gene-replacement therapy, a once and done treatment with the potential to restore normal neurological function.  It is the closest thing to a cure that kids will know in their lifetime.

That hope fueled action. And that action turned into a miracle! ✨✨

Maxwell received his shot to live.

The drug is manufactured, sitting in a refrigerator, waiting to save lives. The only thing standing in our way is simply money. The results from this trial will lead to FDA approval, making the therapy accessible to every child.

➡️ We are ready
➡️ This is the moment to act
➡️ Donate now and help transform a life today — not just one life, but ten lives, and the countless others who will follow
➡️ Share this story with your community — every share spreads hope and brings us closer to the goal

We accept Stock, Donor-Advised Funds (DAFs), Qualified Charitable Distribution (QCD) and in-kind gifts.  All 501c3 and Tax Deductible! 

Please contact Amber Freed at afreed@SLC6A1Connect.org for more information.  Checks can be mailed to:

SLC6A1 Connect
ATTN:  Amber Freed
1939 Temperence Hill Dr
Frisco, TX 75034