Helen-Ann Comstock, who founded AFTD in 2002 to ensure that no other family would have to endure FTD without adequate resources, information, and support, died on July 30, 2025. She was 92.
The family requests that gifts in Ms. Comstock's honor be made to AFTD.
Following her husband’s FTD journey – a painful, confusing, lonely ordeal – Ms. Comstock took the lessons she learned and used them to create AFTD.
The entire organization is united in mourning Ms. Comstock’s passing. Her vision for AFTD as a source of community and support continues to guide our work. And the generosity of spirit she showed in devoting her life to this cause inspires us every day.
Read more about Helen-Ann's legacy on our website.
Helen-Ann started AFTD with a personal gift of $1,000. Today, thousands of volunteers and donors enable us to:
Support people and families affected.
Raise vital awareness.
Advance research to bring forward the first disease-modifying treatments.
Educate healthcare professionals and policymakers for more accurate diagnosis and improved services.
Together, we can support all on this journey.
Together, we can bring forward Helen-Ann's vision to #endFTD.