Helen-Ann Comstock, a former caregiver and founder of AFTD, started the first FTD-focused support group in the late 1990s.
Today, AFTD’s support group network offers in-person and virtual meeting options for 92 groups run by 107 volunteers, with 13 new groups added this past year.
With a gift today, you can help sustain and expand this vital resource and our mission.
Helen-Ann Comstock
Joe and Jackie Pang
“The support group helped me get through what I felt was a nightmare. After my wife Jackie passed in 2020, I knew I had to continue as a facilitator for this group. My role now is to show people that life will continue, and it can be good if you let it be good.”
– Joe Pang, co-facilitator for a support group in New Jersey since 2017
Tanisha Gupta
“I felt completely lost when my mom was diagnosed with bvFTD. I was living far from my family and had trouble turning to friends for support. I soon realized that we needed a group bringing together similarly situated young adult children of individuals with FTD. I cannot imagine going through the FTD experience without our group.”
– Tanisha Gupta, facilitator for the National Young Adult Caregivers support group since 2021
Tammy Schmitz
“I love tending to the emotional and practical needs of caregivers in our group. I am inspired by the way they support each other through shared experiences, listening and offering insights and resources to support each other. When you support AFTD, you’re helping all those impacted by FTD: people with the disease, caregivers, families, friends, and the larger community.”
– Tammy Schmitz, facilitator for a virtual support group for people in the Twin Cities, Minnesota area since 2022
Bringing help & hope to all affected by FTD.
Your gift enables us to:
Support people like Joe, Tanisha, Tammy, and their families.
Raise vital awareness.
Advance research to bring forward the first disease-modifying treatments.
Educate healthcare professionals and policymakers for more accurate diagnosis and improved services.
Together, we are paving the path forward to #endFTD.
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