Empowered Together to #EndFTD: Julia's Story
“The experience is so emotional and devastating, but AFTD lets you know you’re not alone. This is the largest and most visible organization that is championing an end to this disease.”
— Julia, current care partner
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“AFTD makes it easy to find the information I needed. The more knowledge I obtain, the more it makes me feel connected to a solution.”
Julia discovered AFTD after her husband was diagnosed with behavioral variant FTD (bvFTD) in 2022 - he was 56. To help in her new role as a care partner, Julia received an AFTD Comstock Grant to provide respite and utilized our resources to learn how to care for her husband. In March 2024, Julia ran the Los Angeles Marathon with her daughter to raise FTD awareness and funds in support of our mission.
You can support and empower all on this journey, like Julia and her family, by donating today. Your gift will be matched dollar for dollar, up to $25,000, thanks to our generous partner, the Milburn Foundation.
Your gift enables us to:
- Support people affected, like Julia and her family.
- Educate healthcare professionals and policymakers for more accurate diagnosis and improved services.
- Raise vital awareness.
- Advance research to bring forward the first disease-modifying treatments.
Together, we are empowered to #endFTD.